Living with Epilepsy
Transitions of Care
Moving from pediatric to adult health care: helpful information to ensure a successful transition.
Did you know, nearly 20 percent of children in the U.S. under the age of 18 have special health care needs? This population often requires lifelong health-related services, and should transition to adult-centered health care.1
Transition of care is a process for young adults to maintain access to medical care in order to attain life-long functioning and well-being. For one in five children living with a neurological condition, resources to help guide the transition from pediatric to adult health care have been limited.2 In fact, recent research shows only 23 percent of children ages 15-17 in the U.S. are receiving health care transition planning guidance.3
To help address the challenges associated with the transition process, Eisai co-sponsored the development of a consensus statement by the Child Neurology Foundation and endorsed by American Academy of Neurology, Child Neurology Society and American Academy of Pediatrics.*
New: Tools to Support Successful Transitions of Care
Building on the consensus statement, Eisai and the Child Neurology Foundation have partnered to develop tools to help young patients with epilepsy, their caregivers and healthcare professionals navigate successful transitions from pediatric to adult care.
Virtual Infographic
This tool guides patients and caregivers through the eight common principles necessary for a successful transition. In this PDF you will find information designed to give either a patient or caregiver helpful information to support each step of the transitions of care process.
*All content was solely developed by the Child Neurology Foundation.
To learn more about Transitions of Care, read the press release & view the consensus statement
References:
- Transitions of care From Pediatric to adult services for children with Special healthcare needs. (2020, November 19). https://effectivehealthcare.ahrq.gov/products/transitions-care-pediatric-adult/protocol
- Child Neurology Foundation. https://www.childneurologyfoundation.org/
- Lebrun-Harris, L. A., McManus, M. A., Ilango, S. M., Cyr, M., McLellan, S. B., Mann, M. Y., & White, P. H. (2018). Transition planning among us youth with and without special health care needs. Pediatrics, 142(4). doi:10.1542/peds.2018-0194. https://pediatrics.aappublications.org/content/pediatrics/142/4/e20180194.full.pdf
Ella the Jellyfish
Meet Ella the Jellyfish! Ella the Jellyfish is the first and only Amazon Alexa skill developed by Eisai with input from families living with Lennox-Gastaut syndrome (LGS) that provides activities aimed to allow the child to act more independently.
Ella is provided free of charge on Alexa-enabled devices. By saying, “Alexa, open Ella the Jellyfish,” families, caregivers and children can instantly and easily begin to interact with Ella and other characters by listening to Ella tell a story, singing a song, listening to a relaxing meditation or playing games.
Learn more about what Ella can do:
See how Ella helped this family living with LGS:
Interested in introducing Ella to your family? Sign up here!
Amazon, Echo, Alexa, and all related logos are trademarks of Amazon.com, Inc. or its affiliates.
Letters to My Younger Self
Letters to My Younger Self showcases human-interest content that highlights what patients wish they knew at the onset of their journey toward seizure freedom. If you have a story to share, please call 1-844-682-7241 or email elizabeth@mypatientstory.com.
Epilapsey®
Breakthrough convulsive seizures, or seizures that continue to "break through" even while you're on prescription treatment, come with significant risks.1
We know managing epilepsy is an everyday thing—but lapses can happen. Although breakthrough seizures can occur for many reasons, a significant number of people reported experiencing seizures—including convulsive seizures—after missing a dose.2,3 That’s why Eisai created Epilapsey®, an online resource for both patients and physicians to discuss the risks of breakthrough seizures.
To learn more about Epilapsey and breakthrough seizures, check out www.epilapsey.com.
- Bonnett LJ, Powell GA, Smith CT, et al. Breakthrough seizures—Further analysis of the Standard versus New Antiepileptic Drugs (SANAD) study. PLoS One. 2017;12(12):e0190035.
- Hovinga CA, Asato MR, Manjunath R, et al. Association of non-adherence to antiepileptic drugs and seizures, quality of life, and productivity: Survey of patients with epilepsy and physicians. Epilepsy Behav. 2008;13:316-322.
- Cramer JA, Glassman M, Rienzi V. The relationship between poor medication compliance and seizures. Epilepsy Behav. 2002;3:338-342.
Learn more about a device that could help detect seizures and alert caregivers, especially during sleep:https://www.empatica.com/embrace2/
This website contains information relating to various medical conditions. Such information is provided for educational purposes only and is not meant to be a substitute for the advice of a physician or other health care professionals. You should not use this information for diagnosing a health problem or disease. In order for you to make intelligent health care decisions, you should always consult with a physician or other health care provider for your or your loved one's personal medical needs. All quotes included in this website represent the individual experience of doctors, patients, and their caregivers. Individual responses to treatment may vary. Actual identities may have been changed to protect individual privacy.