Improving Epilepsy Care

Transitions of Care

Moving from pediatric to adult health care: helpful information to ensure a successful transition

Did you know, this year, an estimated
18 million young adults (ages 18-21) will be moving into the adult health care system?

Transition of care is a process for young adults to maintain access to medical care in order to attain life- long functioning and well-being. For one in six children living with a neurological condition, resources to help guide the transition from pediatric to adult health care have been limited. In fact, only 40% of patients and their caregivers discuss transitioning with their health care teams.

To help address the challenges associated with the transition process, Eisai has co-sponsored the development of a consensus statement by the Child Neurology Foundation and endorsed by American Academy of Neurology, Child Neurology Society and American Academy of Pediatrics.*

New: Tools to Support Successful Transitions of Care

Building on the consensus statement, Eisai and the Child Neurology Foundation have partnered to develop tools to help young patients with epilepsy, their caregivers and healthcare professionals navigate successful transitions from pediatric to adult care.

Virtual Infographic

This tool guides patients and caregivers through the eight common principles necessary for a successful transition. In this web-linked PDF you will find clickable pop-up boxes designed to give either a patient or caregiver helpful information to support each step of the transitions of care process. Within the pop-up boxes are live web-links to downloadable materials to assist you in learning more about each step.

This infographic is interactive! Here are some tips to help you use it:

In each step, you can click on the buttons that say “I care for someone with epilepsy” or “I am someone with epilepsy,” to get more info, tips and links to downloadable tools to help you during the transition process. Also, you can click on any of the words in blue to learn about what that word or phrase means.

Videos


This video was developed to share viewpoints from healthcare professionals and advocates to bring thoughts and experiences on successful transitional care in epilepsy to life. Watch their stories for helpful tips that could help support your transition process.

More Information About Transitions of Care

The consensus statement was developed by an independent panel of experts and provides recommendations on the medical transition process. It includes the following five neurological conditions as examples:

  • Generalized epilepsy
  • Muscular dystrophy
  • Fragile X
  • Tuberous Sclerosis Complex (TSC)
  • Attention Deficit Hyperactivity Disorder (ADHD)

As a company dedicated to advancing epilepsy care, and in line with our corporate human health care (hhc) mission, Eisai hopes this consensus statement will provide useful information to the health care community, including patients and caregivers, to help make improvements in the transition of care.

*All content was solely developed by the Child Neurology Foundation.

References:
  1. McPheeters M, Davis AM, Taylor JL, Brown RF, Potter SA, Epstein RA. Transition Care for Children With Special Health Needs. Technical Brief No. 15 (Prepared by the Vanderbilt University Evidence-based Practice Center under Contract No. 290-2012-00009-I). AHRQ Publication No.14-EHC027-EF.Rockville,MD:Agency for Healthcare Research and Quality. June 2014. http://www.effectivehealthcare.ahrq.gov/reports/final.cfm.
  2. Child Neurology Foundation. http://www.childneurologyfoundation.org